Our Story

our story

A great deal more is known about OI today than was understood just 30 years ago. Because my two children and I have OI, Type 1, which is also known as “brittle bones,” I am able to speak from personal experience as to advances that have been made in battling this disorder thanks to the caring attitude and generosity of persons like you. After my children received treatment for this disorder, it changed their lives. They underwent positive physical and emotional change over a short period of time, allowing them to begin their journey toward realizing brighter futures. It was during this transformation when I decided I needed to give back. This coincided with the founding of Building Better Bones.

Heidi Johnson
Building Better Bones


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